Consent

Readings on informed consent in data science practices, why it ethically matters, and how to grapple with the practical challenges of obtaining informed consent in data science.

Interactions with World
Producing Objects
Interpreting Models as Knowledge
Title Citation
Informed Consent (Stanford Encyclopedia of Philosophy) Eyal (2019)
Privacy Self-Management and the Consent Dilemma Solove (2012)
The Ethics of Consent: Theory and Practice Miller & Wertheimer (2010)
Middletown, a Study in Contemporary American Culture Lynd & Lynd (1929)
A Belmont Report for Health Data Parasidis, Pike, & McGraw (2019)
Naturalizing Coercion: The Tuskegee Experiments and the Laboratory Life of the Plantation Rusert (2019)
What Makes Personal Data Processing by Social Networking Services Permissible? Wolmarans & Voorhoeve (2022)
What’s Wrong with Automated Influence Benn & Lazar (2021)

References

Benn, C., & Lazar, S. (2021). What’s wrong with automated influence. Canadian Journal of Philosophy, 52, 1–24. https://doi.org/10.1017/can.2021.23
Eyal, N. (2019). Informed Consent. In E. N. Zalta (Ed.), The Stanford encyclopedia of philosophy (Spring 2019). https://plato.stanford.edu/archives/spr2019/entries/informed-consent/; Metaphysics Research Lab, Stanford University.
Lynd, R. S., & Lynd, H. M. (1929). Middletown: A study in modern american culture.
Miller, F. G., & Wertheimer, A. (2010). The ethics of consent: Theory and practice (pp. 1–430). https://doi.org/10.1093/acprof:oso/9780195335149.001.0001
Parasidis, E., Pike, E., & McGraw, D. (2019). A belmont report for health data. New England Journal of Medicine, 380(16), 1493–1495. https://doi.org/10.1056/nejmp1816373
Rusert, B. (2019). Naturalizing coercion:: The tuskegee experiments and the laboratory life of the plantation. https://doi.org/10.1215/9781478004493-003
Solove, D. (2012). Privacy self-management and the consent dilemma. Harvard Law Review, 126.
Wolmarans, L., & Voorhoeve, A. (2022). What makes personal data processing by social networking services permissible? Canadian Journal of Philosophy, 52(1), 93–108. https://doi.org/10.1017/can.2022.4